Those of us with disseminated superficial actinic porokeratosis (DSAP) know that there is no cure for this unfortunate condition that leaves our skin plagued with rough dry spots that are often red and noticeable. The best we can hope for is to minimize the appearance of the spots, so we are always on the look-out […]
I have a skin condition called DSAP (disseminated superficial actinic porokeratosis) which is exacerbated by the sun. Sadly, there is no cure for this skin condition and the only advice from dermatologists is to stay out of the sun. But, who wants to sit indoors? Not me! So every summer I blatantly ignore the advice […]
Researchers have found strong evidence linking MVK gene mutations to DSAP. A mutation in the MVK gene could prevent or reduce the cells’ defense against harmful rays from the sun In late 2012 a group of researchers performed exome sequencing in one unaffected and two affected members of a DSAP family. Exome sequencing allows scientists to […]
Disseminated Superficial Actinic Porokeratosis: Have you ever broken the words down and figured out what each one actually means? Most people can barely pronounce Disseminated Superficial Actinic Porokeratosis, much less understand what it really means. Since it’s a rainy Sunday and I can’t go outside to kayak or any of the other things that undoubtedly makes […]
You’re thinking Slub what? The slub hoodie! They are super light-weight long-sleeve tshirts, usually vneck, with a little hoodie. I love them because they cover my entire arm (my DSAP spots are worse on my wrists, so 3/4 length don’t help), they are lightweight, so unless you live in Arizona or Texas you should be able to […]
No thanks to my dermatologist, for the last couple years I have been treating my DSAP with a combination of two pharmaceutical medications, Tazarotene and Effudux. I wouldn’t have even know about this treatment if someone else with DSAP hadn’t told me. So, I went to my dermatologist who knew very little about DSAP and […]
While covering up your DSAP spots is certainly not a cure and isn’t always full proof, it sometimes does the trick so you don’t feel so self-conscious when you’re wearing a dress, shorts or a short sleeve shirt. Over the years I’ve tried out several different concelaer/ body coverup products and as well as talking to others with […]
I recently went to Hawaii with my husband and 3-year-old daughter. I love snorkeling, stand Up paddle boarding and all kinds of water activities so it’s a challenge trying not to get sunburned. My DSAP spots turn bright red and they will often itch. But it’s inevitable that at some point during the holiday I forget to […]
When I was just about 21 year old I noticed a spot on my wrist. I didn’t think much of it. But by the time I was 26 the backs of my legs were covered in red spots. I went to a dermatologist who froze them off. They scarred pretty badly and from that point […]
